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Stroop, Barbara: Rethinking Well-being in Biomedical Ethics. 2016
Inhalt
1. Introduction
The notion of well-being is vague
The need for a common language
1.1. The goal and methodology
1.2. The structure of the book
2. Paving the way for the analysis ― preliminaries with regard to the concept of well-being
2.1. Well-being and related concepts
Health and well-being
2.2. An initial insight into the character of well-being
Hedonism
Desire-fulfilment theories
Objective list theories
Subjective versus objective concepts of well-being
3. Well-being in debates concerning the beginning of life: prenatal testing and selection
3.1. A short introduction to techniques and practices
Prenatal diagnosis and selective abortion
Preimplantation genetic diagnosis
3.2. The reference to well-being in the debate on prenatal testing and selection
3.2.1. The well-being of the prospective parents
The desire for a biological child
Avoiding the burdens of raising a disabled or an ill child
Preventing PND followed by abortion
Criticism by the disability rights activists
Interim results
3.2.2. The well-being of the future child
The zero-line stance
Procreative perfectionism
The non-identity problem and different people choices
The disability rights critique
The impossibility of anticipating the well-being of a future child
The phenomenon of adaptation
Interim results
3.3. Results arising from the analysis and the issues it raises
3.3.1. The presence of well-being in the face of the notion of moral status
Three alternative stances with regard to prenatal moral status
Classifying the well-being-based lines of reasoning
3.3.2. Tension between objectivist and subjectivist concepts of well-being
Applying the scheme to the arguments which refer to the well-being of the future child
Putting the hypothesis to the test
3.4. Findings: well-being in the debates concerning the beginning of life
4. The role of well-being in the discussion on enhancement: the case of non therapeutic mood-improvement
4.1. The subject of mood enhancement
Two alternative definitions of enhancement
Characterizing mood enhancement
4.2. The role of well-being in the debate on mood enhancement – an analysis
4.2.1. Critical attitudes towards mood enhancement
Mood enhancement as an alleged ‘shortcut’ to well-being
Missing components of well-being where mood enhancement is concerned
Mood enhancers and the danger of losing contact to reality
Pleasure derived from a false origin
The importance of sorrow and sadness
Interim results
4.2.2. Argumentations in favour of mood enhancement
Pleasure as one among other important components of well-being
Indirect promotion of well-being through mood enhancement
Interim Results
4.3. Results arising from the analysis and the issues it raises
4.3.1. The value of (human) nature and the notion of well-being
Material versus formal sense of the concept
The gratitude and the creativity framework
The alternative concepts of human nature and their relationship to well-being
4.3.2. The prevalence of broad objective conceptions of well-being
Bare versus explanatory objectivism
Objective concepts of well-being and essentialism
Transposing the insights to the case of mood enhancement
The prevalence of broad conceptions of well-being
4.4. Drawing conclusions with regard to the role of well-being in the debate on mood enhancement
5. The reference to well-being in debates on the allocation of scarce goods within medicine: the example of kidney allocation
5.1. The quandary of organ allocation
5.2. Criteria used in allocation practice: Eurotransplant and United Network of Organ Sharing
Eurotransplant International Foundation
United Network of Organ Sharing
5.3. Well-being as a consideration in debates on organ allocation
5.3.1. Quality of life as a rationale for outcome in organ allocation
The QALY approach to allocation
QALYs and the problem of unjust discrimination
Conflicts with the principle of need
Life-saving should have priority over life-enhancement
The problem of measuring QoL
A narrow concept of QoL
Interim results
5.3.2. Quality of life as a measure for patient need
Present need
Urgency
Need over a lifetime
Interim results
5.4. Results arising from the analysis and the issues it raises
5.4.1. Well-being and the principle(s) of justice
Alternative theories of justice
Well-being embedded in utilitarian theories of justice
Well-being involved in the dispute on maximizing utility versus justice in distribution
Well-being within egalitarian lines of reasoning
5.4.2. The predominance of a narrow objective concept of well-being
Facilitating the operationalizability and the application of standards of well-being
Justice leading to the requirement of a narrow objective concept of well-being
5.5. Drawing together the main findings concerning the role of well-being in the debate on organ allocation
6. Well-being in discussions concerning the end of life: the cases of assistance in dying and foregoing life-sustaining treatment
6.1. An introduction to the discussion about euthanasia
Common classificatory schemes
6.2. Two examples of assistance in dying in practice
6.2.1. Physician-assisted dying in the Netherlands
6.2.2. Physician-assisted suicide in the U.S. state of Oregon
6.3. The role of well-being in the debate on assistance in dying and foregoing life-sustaining treatment
6.3.1. Well-being and assistance in dying in the case of competent patients
The ‘argument of mercy’137F
The relationship of autonomy and well-being within the main argument for AiD
Death with Dignity
Alleviating pain and suffering
The argument of non-necessity144F
Reactions to the argument of non-necessity
Preliminary results
6.3.2. The reference to well-being in the special case of incompetent patients in discussion on forgoing life-sustaining treatment
The concept of competence and its gate keeping function
Advance directives
The substituted judgment standard
The alleged shortcomings of advance directives and substituted judgments
Best Interest Standard
Preliminary results
6.4. Results arising from the analysis and the issues it raises
6.4.1. The presence of well-being when occurring with autonomy
Paternalism: well-being and autonomy in conflict
Possible relationships of autonomy and well-being
Putting the relationship of autonomy and well-being into concrete terms
6.4.2. Predominance of subjective dimensions of well-being
Inconsistencies on the conceptual level of well-being
The interference of the principle of autonomy with the concept of well-being
6.5. Findings in respect of the role of well-being in the discussions concerning the end of life
7. Rethinking well-being in biomedical ethics – synopsis of the observations and issues raised by the analysis
7.1. The influence of predominant notions on the role of well-being
7.1.1. The shifting presence of well-being in biomedical ethics
The presence of well-being in the face of other prevalent notions
An overt versus a subliminal presence of well-being
The subliminal presence of well-being and the ‘triumph of autonomy’
7.1.2. The changing character of well-being in the debates
Connections between the prevalent notions and the changing character of well-being
Well-being – a chameleon in biomedical ethics?
7.2. Attempts in revealing the ‘true’ character of well-being in biomedical ethics
Ontological, epistemic and evaluative level
Broad versus narrow concepts of well-being
The restoration, protection and promotion of well-being
7.3. Tentative requirements for a concept of well-being in biomedical ethics – an outlook
References